European Society for Paediatric Oncology

SIOP Europe / SIOPE · Non-governmental organisations, platforms and networks and similar · BE

Kategorija
Non-governmental organisations, platforms and networks and similar
Būstinė
Brussels BE
Registruota
2015-03-13
Deklaruotos metinės išlaidos
365 000 € (pačios deklaruota)
Svetainė
http://www.siope.eu
Skaidrumo registras
122803916413-09 ↗
12
Susitikimai su EK
1
Pateiktos pozicijos
0
Pozicijos dokumentai
0
Paminėjimai spaudoje
Sumą deklaruoja pati organizacija Skaidrumo registre; institucijos jos netikrina.

Susitikimai pagal metus

202042021420254

Šaltinis: Europos Komisijos skelbiami susitikimai, sutapatinti pagal skaidrumo registro numerį. n = 12 susitikimų; x — metai pagal susitikimo datą, y — susitikimų skaičius.

Susitikimai su Europos Komisija

Skelbiami tik susitikimai su Komisijos nariais, jų kabinetais ir generaliniais direktoriais. Susitikimai žemesniu lygiu ir daugelis kontaktų Parlamente bei Taryboje į registrą nepatenka.
DataPriėmėTema
2025-09-19Cabinet of Commissioner Ekaterina ZaharievaChildhood cancer
2025-06-20Health and Food SafetyDiscussion on the identification of clinical experts to participate in joint scientific consultations and joint clinical assessments under the EU Regulation on health technology assessment.
2025-05-28Cabinet of Commissioner Olivér VárhelyiChildhood cancer
2025-05-28Cabinet of Commissioner Olivér VárhelyiChildhood cancer
2021-05-18Cabinet of Commissioner Stella KyriakidesExchange of views on the implementation of Europe’s Beating Cancer Plan in paediatric oncology
2021-05-18Cabinet of Commissioner Stella KyriakidesExchange of views on the implementation of Europe’s Beating Cancer Plan in paediatric oncology
2021-05-18Cabinet of Commissioner Stella KyriakidesExchange of views on the implementation of Europe’s Beating Cancer Plan in paediatric oncology
2021-05-18Cabinet of Commissioner Stella KyriakidesExchange of views on the implementation of Europe’s Beating Cancer Plan in paediatric oncology
2020-06-09Cabinet of Commissioner Mariya GabrielEU Paediatric Cancer Research agenda and how the European Paediatric Cancer Community could best partake in and support relevant initiatives
2020-05-26Cabinet of Commissioner Stella KyriakidesVC meeting to discuss the EU's Cancer Plan and its objectives, cancer care and treatment during the COVID-19 pandemic
2020-05-26Cabinet of Commissioner Stella KyriakidesVC meeting to discuss the EU's Cancer Plan and its objectives, cancer care and treatment during the COVID-19 pandemic
2020-01-21Cabinet of Commissioner Stella KyriakidesDiscussion on cancer

Ką pateikė viešoms konsultacijoms

2024-02-08 · Report on the application of the General Data Protection Regulation ↗ originalus šaltinis
SIOPE is the single united organization of paediatric oncology clinicians and academia in Europe with over 2,500 members in 35 countries. Paediatric cancers are rare diseases but represent a major aggregate health burden - the first cause of death by disease in children older than 1 year in Europe and an important contributor to long-term morbidity in most of the estimated 500,000 survivors. Cross-border collaboration in paediatric oncology is required to overcome small sample sizes in research and exchange specialist expertise in care delivery. Data sharing is systematically accompanied by strong measures to keep personal data safe, such as pseudonymisation, state-of-the-art technologies…

Kokias ES temas nurodo sekanti

SIOPE focuses on policies and programmes addressing healthcare organization & delivery and health research, in particular in the areas of childhood cancer as well as cancer (overall) and rare diseases.
Main EU initiatives followed as of October 2025:
- Europe’s Beating Cancer Plan across its initiatives e.g. European Cancer Information Systems & Inequalities Registry
- EU Cancer Mission
- Pharmaceutical Strategy for Europe
- Critical Medicine Act
- EU Lifesciences Strategy
- Heath Technology Assessment
- European Reference Networks
- Horizon Europe
- EU4Health
- Multi-annual Financial Framework
- European Health Data Space
- Health Emergency Preparedness and Response
Main EU legislative files followed as of October 2025:
- Revision of the EU Pharmaceutical Legislation including as pertaining to Regulation and Directive on Medicinal products for human use, Regulation